Patient & Partner Stories

Allison and her son Matthew

Allison, a mother of three, is passionate about advocating for research. Specifically for Duchenne Muscular Dystrophy since her middle child, Matthew, was diagnosed with this disease at 21 months.


Bonnie is Vice President of Segal Trials, a network of research sites in south Florida and Charleston, SC that has been in business for 20 years.


Christian is a serial entrepreneur and innovator in clinical research. Currently, Christian leads three organizations that are creating a positive impact on the clinical research industry.


Javon, a brick contributor for the Hero’s Journey™ Art project, was participating in a clinical trial during the unveiling of the 3rd sculpture in November 2017. He believes clinical trials gave him another chance at life.


Kate who works for Segals Trials is an advocate for clinical research as a care option.

Michelle and her daughter Lilly

Michelle, a Winston-Salem native, is an advocate for Dravet Syndrome research and has made positive strides in the Expanded Access Program.


Preston has participated in multiple clinical trials and has encouraged friends and family to volunteer as well.


Sandy has participated in a number of clinical trials.


Simone, a Greater Gift supporter and clinical research advocate, hosted a fundraising campaign as part of her class project to raise awareness for the importance of clinical trial participation and giving back.


Tracey, a Lead Clinical Research Coordinator at Raleigh Neurology, has worked in clinical research for over 4 years and has been a nurse for over 11 years. In her spare time, she enjoys all things food and exercising. Tracey holds a BS in Ceramic and Materials Engineering from Rutgers University and formerly worked as a…

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